It’s happening again – VWD Connect Foundation announces the 2018 National Type 3 Von Willebrand Disease Conference, Making the Connection, June 22-25, 2018 in Palm Beach Gardens, FL.
Check out the details on the Events page. Hope to see you there!
Have an idea for a way VCF can help? Let us know! This is YOUR Foundation, Community Members will shape and guide its future. But only if you tell us what will help. If you find a resource to help families living with Type 3 VWD, send it our way so we can share it on the website. Have an idea for an educational event? Let’s see if we can make it happen! Are you a fundraising guru? We could use your skills! Together we can make a difference in the lives of those living with Type 3 VWD.
The Hemophilia Federation of America is holding their Annual Symposium in Cleveland, Ohio, April 26-29, 2018. VCF will be represented there, many of our board and faculty will be in attendance. What about you? If you are going to the HFA Annual Symposium, let us know. We will make sure we connect at the Symposium! For more information check out the HFA Annual Symposium.
Traveling with a bleeding disorder takes some planning! Check out National Hemophilia Foundation’s tips for travel.
If you ask me, it’s dealing with emergency rooms. The thought of having to go to an ER and explaining about VWD makes my skin crawl! What about you? If you had to pick from the following, which is the hardest to deal with having Type 3 VWD?
People with Type 3 VWD are an extremely small group, it is estimated that there are only 300-400 in the United States. So how can your voice be heard? How can your needs be known? VCF is here to help.
The community has noticed you! The conference in May 2017 has spurred great conversation about the challenges of Type 3 VWD and people are beginning to act. Research is being planned, organizations are reaching out to see how they can help and connections are growing.
Stay tuned for more to come!