If you are a member of the Foundation you should have received an email with a username and password today, April 16th. If you did not receive it, or if you would like to become a member and apply for the conference please email Jeanette Cesta at JCesta@VWDConnect.org
Global Blood Disorder Foundation Inc (GBDF), who partnered with our Type 3 VWD Conference in 2017, is accepting applications for their 2019-2020 International AFFIRM Leadership Program. AFFIRM is an acronym for A Fellowship For Integrating Responsible Mentors.
AFFIRM 2019-2020 applications are open to people ages 26-38 years old with a bleeding disorder (men and women).
The website for and criteria for applying is http://www.globalblooddf.org/
The deadline for applications is January 25th, 2019.
What a wonderful night of dining, dancing and entertainment! We thank all who attended and all our donors. Looking forward to the 2019 2nd Crystal Ball!
We are so excited that tickets are now on sale for The First Annual VWD Connect Foundation Crystal Ball. Click here for more information and to buy your tickets.
We are excited to announce the first VWD Connect Foundation Crystal Ball to benefit VWD Connect Foundation. It will be a glittering evening filled with food, drink, dancing and unique auction items. We have reserved a block of rooms at The PGA National Resort and Spa for our out of town guests at a reduced rate. Tickets will go on sale early October, check back to purchase tickets soon!
Welcome! I am so excited that we are launching the VWDConnect.org website! I hope you find this site to be a place for connection; connection with each other, the bleeding disorder community and medical community. I like to think of this website as a “virtual conference”. At the first national Type 3 VWD conference in May 2017, the energy and power of the patients and families, faculty, national organization representatives and the staff being able to come together to share, support and educate was a very special experience. But since we all don’t live in the same hometown, I hope this can become your virtual conference when we can’t be together physically.
Our goal to keep the content fresh with current information on resources, Foundation news and research information and opportunities. We will be also adding a private, Community Member only chatroom later in 2018. The direction of the website will be developed with the Community Members’ input, so start thinking about what you would like to see on the website.
For now, please explore the site and let us know your thoughts. For those of you who are visiting and are unfamiliar with VWD Connect Foundation or Type 3 VWD, please let us know if you have any questions as you look around.
Until next post,
Co-Founder and President
VWD Connect Foundation
Dear fellow attendees,
On behalf of the VWD Connect Board and Staff, I would like to thank you for attending the conference and make it a big success! I hope you found the conference very informative and worth your time.
I am a member of the Foundation’s Tech Committee and also an attendee myself. This is my second year attending the conference and I felt it was very worthwhile; I met a lot of new families and also enjoyed the content from the new sessions. I am very appreciative that our feedback from last year didn’t go unnoticed and some of the new content and arrangements reflected that. I hope you made a lot of new friends and connections to share your ideas, information regarding the treatments and also share your emotions with someone who understand what we go through as a severe VWD family.
Finally, a huge thanks to Jeanette, Ed, the faculty and the staff. I am so grateful to Jeanette and Ed for their tireless work to make this event possible.
Please check back again soon for more pictures and posts from the conference.
International Study Group Findings Suggest Prophylaxis Could Reduce Hospitalizations for VWD Patients. To read more, go to the Resource Room
It is my pleasure and an honor to invite you to the VWD Connect Foundation Inc. website. We are so excited to be launching this new website and with it holding the promise to provide you with education, resources, research information, conference and program opportunities and most of all a connection to each other. As we further develop the website, we believe it will become an amazing resource to you and your families in the arena of Type 3 VWD. One of the features I love most about our website is the opportunity to be involved in the direction of the foundation by expressing your needs, concerns and accomplishments. As one of your Executive Members of the Board of Directors and Co- Founder of VWD Connect Foundation Inc., a huge WELCOME!
Co-Founder and Board Member
VWD Connect Foundation