OUR MISSION

Why Our Mission is Different, And Matters

VWD Connect Foundation Inc., (VCF) is a non-profit organization founded in Florida on August 1, 2017. VWD Connect has been established to serve the bleeding disorder community, focusing on severe Von Willebrand Disease.

The Foundation provides education and connection for patients and families, and supports research which will benefit the Von Willebrand Disease community.

WHY THIS MATTERS
VCF is the only Foundation in the United States dedicated to serving the most severe Von Willebrand Disease: Type 3/Severe.
We are driven by the urgency to connect those with this disease to each other because we understand that Type 3/Severe patients often struggle with social stigma and isolation.
We are deeply motivated to connect our patients to medical, scientific and related professional services communities to help enhance the process of diagnose and treatments for this complex disease.
We are determined to create a broader community awareness of this disease in an effort to secure the cure: the hope for a better quality of life for those born and living with Type 3/Severe VWD.

OUR MISSION

Why Our Mission is Different, And Matters

VWD Connect Foundation Inc., (VCF) is a non-profit organization founded in Florida on August 1, 2017. VWD Connect has been established to serve the bleeding disorder community, focusing on severe Von Willebrand Disease.

The Foundation provides education and connection for patients and families, and supports research which will benefit the Von Willebrand Disease community.

WHY THIS MATTERS
VCF is the only Foundation in the United States dedicated to serving the most severe Von Willebrand Disease: Type 3/Severe.
We are driven by the urgency to connect those with this disease to each other because we understand that Type 3/Severe patients often struggle with social stigma and isolation.
We are deeply motivated to connect our patients to medical, scientific and related professional services communities to help enhance the process of diagnose and treatments for this complex disease.
We are determined to create a broader community awareness of this disease in an effort to secure the cure: the hope for a better quality of life for those born and living with Type 3/Severe VWD.

A Welcome from the Executive Director

Welcome to the VWD Connect Foundation website. If you have Type 3/Severe Von Willebrand Disease (VWD), you have come home. If you are interested in learning more about this rare genetic bleeding disorder, which we estimate affects just 1 in one million people in the United States, I am grateful your search brought you here.

A Welcome from the Executive Director

Welcome to the VWD Connect Foundation website. If you have Type 3/Severe Von Willebrand Disease (VWD), you have come home. If you are interested in learning more about this rare genetic bleeding disorder, which we estimate affects just 1 in one million people in the United States, I am grateful your search brought you here.

There is a reason why “Connect” is etched in the name of this Foundation, and there has never been a more critical time to become a Member than now!

Membership is FREE and OPEN to patients diagnosed with Type 3/Severe Von Willebrand Disease.

There is a reason why “Connect” is etched in the name of this Foundation, and there has never been a more critical time to become a Member than now!

Membership is FREE and OPEN to patients diagnosed with Type 3/Severe Von Willebrand Disease.

“It means a LOT……HERE is where you find friends and connect with others.”
-2017 Conference Participant
“It means a LOT……HERE is where you find friends and connect with others.”
-2017 Conference Participant

About VWD Connect Foundation Inc.

Founded in 2017 VWD Connect Foundation is a 501 (c) 3 non-profit. It has an Executive Director in addition to a four-member volunteer Board of Directors. Its mission is to provide education and connection for parents and families, and support research which will benefit the Von Willebrand Disease community.

About Medical and Scientific Advisory Board

Leveraging the Power of International Collaboration

In 2020 the VWD Connect Foundation formed a prominent group of researchers, scientists and specialists in bleeding disorders and related disease experts to lay a groundwork, share expertise, and funnel knowledge. Its ultimate goal: a cure. This expertise has been formalized in a Medical and Scientific Advisory Board (MSAB) that will fundamentally chart the future of the Foundation and the lives of its members.

54% of patients reported that neither parent was diagnosed with a bleeding disorder prior to their birth

-2018 VWD Connect Foundation Conference Participants

VWD CONNECT FOUNDATION

About VWD Connect Foundation Inc.

Founded in 2017 VWD Connect Foundation is a 501 (c) 3 non-profit. It has an Executive Director in addition to a four-member volunteer Board of Directors. Its mission is to provide education and connection for parents and families, and support research which will benefit the Von Willebrand Disease community.

About Medical and Scientific Advisory Board

Leveraging the Power of International Collaboration

In 2020 the VWD Connect Foundation formed a prominent group of researchers, scientists and specialists in bleeding disorders and related disease experts to lay a groundwork, share expertise, and funnel knowledge. Its ultimate goal: a cure. This expertise has been formalized in a Medical and Scientific Advisory Board (MSAB) that will fundamentally chart the future of the Foundation and the lives of its members.

54% of patients reported that neither parent was diagnosed with a bleeding disorder prior to their birth

– 2018 VWD Connect Foundation Conference Participants

VWD CONNECT FOUNDATION