SPOTLIGHT STORIES

Spotlight Von Willebrand Disease

Cody Kester: Patient, Advocate, High Gear Activist

Cody Kester has Type 3/Severe Von Willebrand Disease. He is four months into his job as a volunteer fireman for hometown Alma, Arkansas and neighboring communities. At 6’4” and 400 lbs., and an admittedly large “squash”, his Chief had challenges finding the right gear as Kester set out to fulfill his 160 hours of classroom training before being deployed on his first on-call emergency. But the fates have a sense of humor.

FEATURED SPOTLIGHT

SPOTLIGHT STORIES

Spotlight Von Willebrand Disease

Cody Kester: Patient, Advocate, High Gear Activist

Cody Kester has Type 3/Severe Von Willebrand Disease. He is four months into his job as a volunteer fireman for hometown Alma, Arkansas and neighboring communities. At 6’4” and 400 lbs., and an admittedly large “squash”, his Chief had challenges finding the right gear as Kester set out to fulfill his 160 hours of classroom training before being deployed on his first on-call emergency. But the fates have a sense of humor.

During a special symposium on women and their periods in 2019 we learned from 23 participants that over half turned to the Emergency Department evaluation for heavy menstrual bleeding (HMB).

– 2019 Special Symposium on Women and Their Periods Participants

“You have no idea! After living with VWD 3 not knowing or having met anyone with this blood disorder, I’m no longer alone!! This is too good to be true.”
-2017 Conference Participant
During a special symposium on women and their periods in 2019 we learned from 23 participants that over half turned to the Emergency Department evaluation for heavy menstrual bleeding (HMB).

– 2019 Special Symposium on Women and Their Periods Participants

“You have no idea! After living with VWD 3 not knowing or having met anyone with this blood disorder, I’m no longer alone!! This is too good to be true.”
-2017 Conference Participant

FEATURED SPOTLIGHT