Because severe von Willebrand disease is ultrarare, few in the general public know about how it deeply affects the lives of those who have it.

This disease often governs every detail of daily living. Many decisions that most take for granted become incredibly important for those with severe VWD. Where to live and go to school, engaging in sports and activities, travel, and most importantly how to find knowledgeable medical providers and treatments.

The work of VWD Connect Foundation is centered around “connection.” Helping patients form vital connections to each other for much-needed emotional support. Connecting patients to best-in-class medical experts, social workers and other professionals for lifelong and often lifesaving care. Facilitating connection to hope and promise for a cure.

We need precious resources to make these all happen. Please donate today.