Our Leadership
Board of Directors
Founded in 2017, VWD Connect Foundation is a 501 (c) (3) non-profit with an Executive Director in addition to a four-member volunteer Board of Directors. Its mission is to provide education and connection for patients and families, and to support research which will benefit the von Willebrand disease community.
Medical and Scientific Advisory Board
In 2020, VWD Connect Foundation assembled an international group of prominent researchers, scientists, and bleeding disorder specialists to lay a groundwork, share expertise, and funnel knowledge. Its ultimate goal: a cure. This initiative has been formalized in our Medical and Scientific Advisory Board (MSAB).
Our Mission
VWD Connect Foundation Inc., (VCF) is a U.S. national non-profit organization established to serve the bleeding disorder community, focusing on severe von Willebrand disease. VCF is the only foundation in the United States dedicated to serving severe von Willebrand disease. The Foundation provides education and connection for patients and families, and supports research which will benefit the von Willebrand disease community.
By connecting patients with medical, scientific and related professionals we aim to enhance the process of diagnosis and treatment. We are determined to create broader community awareness of this disease in an effort to secure the cure.
Membership
There is a reason why “Connect” is etched in the name of this Foundation, and there has never been a more critical time to become a Member than now!
Membership is FREE and OPEN to patients diagnosed with severe von Willebrand disease. There are both U.S. and international membership options available.
Spotlights
Meet some very special people! Foundation Members from all walks of life, Foundation Staffers, and more.
Read about their lives and how living and/or working with severe VWD has impacted their lifestyle choices and those of the people around them.