Welcome to the VWD Connect Foundation website. If you have Type 3/Severe Von Willebrand Disease (VWD), you have come home. If you are interested in learning more about this rare genetic bleeding disorder, which we estimate affects just 1 in one million people in the United States, I am grateful your search brought you here.

We are the only U.S. national organization established and devoted exclusively to supporting Type 3/Severe VWD patients; which strikes men and women equally, and for which there is no cure.

If you are a Type 3/Severe VWD patient you well know you are unique. You understand the deep need for access to better trained medical specialists and healthcare providers, along with vital information regarding current research and management options. More importantly, you understand the urgency for a cure. At VWD Connect Foundation we grasp these parallel agendas.

And our goals are clear and always in forward motion.

• Provide you the Resources to enhance your daily lives medically, socially, and emotionally.
• Provide you a supportive Membership community and valuable connections with others who have Type 3/Severe VWD.

Even a community of few with a rare and little understood disease can be strengthened by the realization of many.

EXPLORE the site and be in touch with any questions about this Foundation.

Thank you for landing “here.”

Jeanette Cesta

Executive Director