Registration for the 2020 VWD Connect Foundation Conference will be open by the end of March!

We have an exciting conference planned and hope to see our old friends and also many new faces.  Those registered with the Foundation will receive an email in the next few weeks with a username and password to register.  If you are interested in attending the 2020 Conference, please make sure we have a current email address on file.  If you have never attended before, please contact me at JCesta@VWDConnect.org

 

SURO Applications Now Open!

Step Up Reach Out (SURO) is an international leadership advocacy program designed to develop and
train young adults in the bleeding disorders community globally who want to
step up and help to promote better care and services in their communities. 

The program application is open to males 21 yrs to 25 yrs with a bleeding disorder.

We are now  accepting new applications for the SURO 2020.   The deadline is January 25, 2020 for applications. 

For more information and to apply please visit:

http://www.globalblooddf.org/

 

2019 National Type 3/Severe VWD Conference Sneak Peak!

Here’s a look at Saturday’s breakout sessions…

 All About Insurance

Come discuss the latest in health insurance issues with community experts.

Infusing 101

The thought of learning to infuse or helping your young child navigate through infusing and be overwhelming. Come meet with experienced nurses to discuss the basics in infusing.  Ask questions, learn techniques and tricks. There will be no live infusing, but supplies will be available for demonstration and discussion.

 Medical Aging Issues

Aging brings new challenges, especially with severe VWD.  Come discuss how to handle natural aging changes with the added concern of severe VWD.  Learn about managing common health events along with your bleeding disorder.

The Science Behind Genetics

The genetics of VWD is complex! Dig in with top specialists in the field to increase your understanding of VWD genetics and inheritance.

Pain, Anxiety and Depression

Do we experience Pain, Anxiety and Depression individually or are they each part of a whole and inter-connected? Join us as we explore the common association of pain, anxiety and depression with chronic disease and discover new coping skills.

Dental Issues

Smile! A bleeding disorder doesn’t have to stop you from taking good care of your teeth.  Come discuss dental issues with a dentist experienced in working with the bleeding disorder community.

 

Women’s Health – Minus the Periods!

Come discuss all things concerning reproductive bleeding – except the period. In this breakout we’ll address pregnancy, menopause, and general good practices for women’s reproductive health.