Thanks to all who supported the 2018 Crystal Ball!
What a wonderful night of dining, dancing and entertainment! We thank all who attended and all our donors. Looking forward to the 2019 2nd Crystal Ball!
2018 Crystal Ball – Tickets On Sale
We are so excited that tickets are now on sale for The First Annual VWD Connect Foundation Crystal Ball. Click here for more information and to buy your tickets.
2018 Crystal Ball – Save The Date
We are excited to announce the first VWD Connect Foundation Crystal Ball to benefit VWD Connect Foundation. It will be a glittering evening filled with food, drink, dancing and unique auction items. We have reserved a block of rooms at The PGA National Resort and Spa for our out of town guests at a reduced rate. Tickets will go on sale early October, check back to purchase tickets soon!
Welcome to VWDConnect.org
Welcome! I am so excited that we are launching the VWDConnect.org website! I hope you find this site to be a place for connection; connection with each other, the bleeding disorder community and medical community. I like to think of this website as a “virtual conference”. At the first national Type 3 VWD conference in May 2017, the energy and power of the patients and families, faculty, national organization representatives and the staff being able to come together to share, support and educate was a very special experience. But since we all don’t live in the same hometown, I hope this can become your virtual conference when we can’t be together physically.
Our goal to keep the content fresh with current information on resources, Foundation news and research information and opportunities. We will be also adding a private, Community Member only chatroom later in 2018. The direction of the website will be developed with the Community Members’ input, so start thinking about what you would like to see on the website.
For now, please explore the site and let us know your thoughts. For those of you who are visiting and are unfamiliar with VWD Connect Foundation or Type 3 VWD, please let us know if you have any questions as you look around.
Until next post,
Co-Founder and President
VWD Connect Foundation
Dear fellow attendees,
On behalf of the VWD Connect Board and Staff, I would like to thank you for attending the conference and make it a big success! I hope you found the conference very informative and worth your time.
I am a member of the Foundation’s Tech Committee and also an attendee myself. This is my second year attending the conference and I felt it was very worthwhile; I met a lot of new families and also enjoyed the content from the new sessions. I am very appreciative that our feedback from last year didn’t go unnoticed and some of the new content and arrangements reflected that. I hope you made a lot of new friends and connections to share your ideas, information regarding the treatments and also share your emotions with someone who understand what we go through as a severe VWD family.
Finally, a huge thanks to Jeanette, Ed, the faculty and the staff. I am so grateful to Jeanette and Ed for their tireless work to make this event possible.
Please check back again soon for more pictures and posts from the conference.
Save the Date for the 2018 National Conference!
It’s happening again – VWD Connect Foundation announces the 2018 National Type 3 Von Willebrand Disease Conference, Making the Connection, June 22-25, 2018 in Palm Beach Gardens, FL.
Check out the details on the Events page. Hope to see you there!
HFA Meeting Anyone?
The Hemophilia Federation of America is holding their Annual Symposium in Cleveland, Ohio, April 26-29, 2018. VCF will be represented there, many of our board and faculty will be in attendance. What about you? If you are going to the HFA Annual Symposium, let us know. We will make sure we connect at the Symposium! For more information check out the HFA Annual Symposium.