Step Up Reach Out (SURO) is an international leadership advocacy program designed to develop and
train young adults in the bleeding disorders community globally who want to
step up and help to promote better care and services in their communities.
The program application is open to males 21 yrs to 25 yrs with a bleeding disorder.
We are now accepting new applications for the SURO 2020. The deadline is January 25, 2020 for applications.
For more information and to apply please visit:
We now have definite dates!
The 4th Annual VWD Connect Foundation National Type 3/Severe VWD Conference
will be held June 26-29, 2020 at the PGA National Resort & Spa in Palm Beach Gardens , Florida.
Once again, thanks to PGA National Resort & Spa for supporting the Foundation
More details to follow!
National Hemophilia Foundation’s Annual Meeting is in Califoria October 3rd and VWD Connect will be there! If you are going to be there also, let us know – call or email – and we’ll plan a time to connect.
Thank you to all our faculty, staff, sponsors and attendees! Hope to see you and many new faces in 2020!
Here’s a look at Saturday’s breakout sessions…
| All About Insurance
Come discuss the latest in health insurance issues with community experts.
The thought of learning to infuse or helping your young child navigate through infusing and be overwhelming. Come meet with experienced nurses to discuss the basics in infusing. Ask questions, learn techniques and tricks. There will be no live infusing, but supplies will be available for demonstration and discussion.
| Medical Aging Issues
Aging brings new challenges, especially with severe VWD. Come discuss how to handle natural aging changes with the added concern of severe VWD. Learn about managing common health events along with your bleeding disorder.
|The Science Behind Genetics
The genetics of VWD is complex! Dig in with top specialists in the field to increase your understanding of VWD genetics and inheritance.
|Pain, Anxiety and Depression
Do we experience Pain, Anxiety and Depression individually or are they each part of a whole and inter-connected? Join us as we explore the common association of pain, anxiety and depression with chronic disease and discover new coping skills.
Smile! A bleeding disorder doesn’t have to stop you from taking good care of your teeth. Come discuss dental issues with a dentist experienced in working with the bleeding disorder community.
|Women’s Health – Minus the Periods!
Come discuss all things concerning reproductive bleeding – except the period. In this breakout we’ll address pregnancy, menopause, and general good practices for women’s reproductive health.
As always, we greatly appreciate your steadfast support.
If you would like to learn more about Octapharma and their products, please visit:
We are happy that you will be joining us at the 2019 National Conference and appreciate your support.
If you would like to know more about Takeda and their products, please visit:
If you are a member of the Foundation you should have received an email with a username and password today, April 16th. If you did not receive it, or if you would like to become a member and apply for the conference please email Jeanette Cesta at JCesta@VWDConnect.org
Global Blood Disorder Foundation Inc (GBDF), who partnered with our Type 3 VWD Conference in 2017, is accepting applications for their 2019-2020 International AFFIRM Leadership Program. AFFIRM is an acronym for A Fellowship For Integrating Responsible Mentors.
AFFIRM 2019-2020 applications are open to people ages 26-38 years old with a bleeding disorder (men and women).
The website for and criteria for applying is http://www.globalblooddf.org/
The deadline for applications is January 25th, 2019.