FOUNDATIONS AND FRIENDS

FOUNDATIONS AND FRIENDS

Hemophilia Treatment Center Finder (HTCs)
Bleeding disorders are very complex. These medical centers are often the best choice for a comprehensive, experienced, and caring teams of professionals who can provide immediate care for your bleeding disorder, including Type 3/Severe Von Willebrand Disease.

American Thrombosis & Hemostasis Network
The American Thrombosis and Hemostasis Network (ATHN) is a nonprofit organization dedicated to improving the lives of people affected by bleeding and clotting disorders using technology to secure data, advance knowledge, transform care—and ultimately improve lives.

Foundation for Women & Girls with Blood Disorders
The Foundation is dedicated to achieving correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls.

National Hemophilia Foundation
The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

Hemophilia Federation of America
Hemophilia Federation of America (HFA) is a national nonprofit organization that assists and advocates for the bleeding disorders community.

Steps for Living
This website offers a robust menu of information, materials, tools, checklists, interactive games, videos and physical activities for parents raising children with bleeding disorders.

Medic Alert Foundation
This nonprofit membership organization is the leader in medical ID’s and online Emergency Health Records; providing peace of mind when critical information is required most.

Medical and Scientific Advisory Council
This Council was established in 1954 to issue recommendations and advisories on treatment, research and other general health concerns for the bleeding order community.

Patient Services Incorporated
Founded in 1989 PSI is the first non-profit to provide financial support and guidance for qualified patients with specific, rare chronic diseases. Their pioneer model has helped families rediscover hope and health.

Educational Scholarships
Gratefully, we have many in the bleeding disorder community that support our young adults. Foundations, Federations, Industry and Individuals are stepping up in significant ways to make scholarships and higher education affordable and accessible. This is a link to some current listings.

Hemophilia Treatment Center Finder(HTCs)
Bleeding disorders are very complex. These medical centers are often the best choice for a comprehensive, experienced, and caring teams of professionals who can provide immediate care for your bleeding disorder, including Type 3/Severe Von Willebrand Disease.

American Thrombosis & Hemostasis Network
The American Thrombosis and Hemostasis Network (ATHN) is a nonprofit organization dedicated to improving the lives of people affected by bleeding and clotting disorders using technology to secure data, advance knowledge, transform care—and ultimately improve lives.

Foundation for Women & Girls with Blood Disorders
The Foundation is dedicated to achieving correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls.

National Hemophilia Foundation
The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

Hemophilia Federation of America
Hemophilia Federation of America (HFA) is a national nonprofit organization that assists and advocates for the bleeding disorders community.

Steps for Living
This website offers a robust menu of information, materials, tools, checklists, interactive games, videos and physical activities for parents raising children with bleeding disorders.

Medic Alert Foundation
This nonprofit membership organization is the leader in medical ID’s and online Emergency Health Records; providing peace of mind when critical information is required most.

Medical and Scientific Advisory Council
This Council was established in 1954 to issue recommendations and advisories on treatment, research and other general health concerns for the bleeding order community.

Patient Services Incorporated
Founded in 1989 PSI is the first non-profit to provide financial support and guidance for qualified patients with specific, rare chronic diseases. Their pioneer model has helped families rediscover hope and health.

Educational Scholarships
Gratefully, we have many in the bleeding disorder community that support our young adults. Foundations, Federations, Industry and Individuals are stepping up in significant ways to make scholarships and higher education affordable and accessible. This is a link to some current listings.

“As someone who has suffered with this rare and not well-diagnosed disease my whole life, VWD Connect is a much needed support and outreach organization that has allowed me to connect with others on a national level, explore the latest research, and learn about daily treatment options…not to mention the tremendous support group that’s out there for myself and my family.”
-Shab S. Poloz