Hemophilia Treatment Center Finder (HTCs)
Bleeding disorders are very complex. These medical centers are often the best choice for a comprehensive, experienced, and caring teams of professionals who can provide immediate care for your bleeding disorder, including severe von Willebrand disease.

American Thrombosis & Hemostasis Network
The American Thrombosis and Hemostasis Network (ATHN) is a nonprofit organization dedicated to improving the lives of people affected by bleeding and clotting disorders using technology to secure data, advance knowledge, transform care—and ultimately improve lives.

Foundation for Women & Girls with Blood Disorders
The Foundation is dedicated to achieving correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls.

National Bleeding Disorders Foundation
Formerly known as NHF, The National Bleeding Disorders Foundation (NBDF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

Hemophilia Federation of America
Hemophilia Federation of America (HFA) is a national nonprofit organization that assists and advocates for the bleeding disorders community.

Steps for Living
This website offers a robust menu of information, materials, tools, checklists, interactive games, videos and physical activities for parents raising children with bleeding disorders.

Medic Alert Foundation
This nonprofit membership organization is the leader in medical ID’s and online Emergency Health Records; providing peace of mind when critical information is required most.

Medical and Scientific Advisory Council
This Council was established in 1954 to issue recommendations and advisories on treatment, research and other general health concerns for the bleeding disorder community.

Accessia Health
The Accessia Health Foundation is a 501(c)(3) organization that raises unrestricted funds to support Accessia Health’s very important mission to help create a world where medical expenses don’t break the same people who are trying to heal.