The 2022 National Conference was held June 24-27, 2022.

 

Conference Mission

To provide an opportunity for Type 3/Severe Von Willebrand Disease patients and a guest to enhance their connection with other patients, care providers, the bleeding disorder community and the community at large.

To accomplish this mission we:

1. Provided hotel accommodations and meals for a 4-day, 3-night conference for patients and a guest.
2. Gathered a faculty of healthcare providers specializing in bleeding disorders including physicians, nurses, physical therapists, social workers, geneticists and health educators.
3. Provided educational content consisting of full assembly and small group presentations and discussions.
4. Included among the medical educational topics: diagnosis, symptoms, treatment options, inhibitors, prophylaxis and joint health.
5. Included among the psychosocial topics: relationships, family challenges, emotional challenges of loss and depression, disclosure and positive coping strategies.
6. Provided a safe and relaxed atmosphere conducive to making connections between attendees.