2024 VWD Connect Foundation

Provider Education Workshop

on Severe Von Willebrand Disease

VWD Connect Foundation (VCF) was formed to serve the bleeding disorder community, focusing on severe Von Willebrand Disease (sVWD). We provide education and connection for patients and families, and support research which will benefit the Von Willebrand Disease community. In support of these patients accessing knowledgeable management and care from their medical providers, the Foundation will be hosting a Provider Education Workshop November 8-10, 2024, at the West Palm Beach Marriott in West Palm Beach, Florida.

The Foundation has identified a strong need for focused education for providers across multiple disciplines specific to severe Von Willebrand Disease patients. Curriculum will be presented by Foundation Faculty and will be designed to increase provider knowledge on management, treatment options and disease state including laboratory & genetic testing. Sessions will be conducted in both full assembly and small group discussions.

Attendance is open to the following medical professionals who work with, or expect to be working with, severe VWD patients:

Adult Hematologists
Gastroenterologists
Pediatric Hematologists
Hematology/Infusion Nurses
Orthopedic Surgeons
OB/Gynecologists
Physical Therapists
Genetic Counselors
Hematology Social Workers
Family/Maternal Medicine

The weekend workshop will begin on Friday, November 8th with an opening reception at 5:00 PM and end at 3:00 PM after lunch on Sunday, November 10^th. The Foundation will provide free of charge a hotel room for Friday and Saturday nights, and all meals and conference materials for those attending.

Sessions will include:

Disease state – genetics, symptoms, treatment options and management
Case study presentation – by both faculty and attendees for discussion
Research update and think tank
Six Foundation members will participate in a panel sharing experiences living with sVWD.

To register for the workshop,
please click here.

For more information about the event, please contact:

Jeanette Cesta, Executive Director

JCesta@VWDConnect.org

(561) 373 3889

Many thanks to our Platinum Sponsor Takeda for their generous support.

Please click on the image below to visit their website.

Thank you to our Gold Sponsor CSL Behring.