The 2023 U.S. National Conference was held
July 21 – 24, 2023.


Conference Mission

To provide an opportunity for Type 3/Severe Von Willebrand Disease patients and a guest to enhance their connection with other patients, care providers, the bleeding disorder community and the community at large.

To accomplish this mission we:

1. Provided hotel accommodations and meals for a 4-day, 3-night conference for patients and a guest.
2. Gathered faculty of healthcare providers specializing in bleeding disorders including physicians, nurses, physical therapists, social workers, geneticists and health educators.
3. Educational content consisted of full assembly and small group presentations and discussions.
4. Included among the medical educational topics were: diagnosis, symptoms, treatment options, inhibitors, prophylaxis and joint health.
5. Psychosocial topics included: relationships, family challenges, emotional challenges of loss and depression, disclosure and positive coping strategies.
6. Provided a safe and relaxed atmosphere conducive to making connections between attendees.

A HUGE thank you to our Platinum Sponsor Takeda for their generous support.

Thank you to our Gold Sponsors, CSL Behring and Vega Therapeutics for their generous support.

Please click on the images below to visit our sponsors’ websites.