2023 MENTAL HEALTH WORKSHOP
VWD Connect Foundation’s 2023 Mental Health Workshop weekend will be held Nov. 17 – 19, 2023.
Living with a severe chronic illness brings challenges beyond just the physical, both for patients and those who care for them.
During the Foundation’s first Mental Health Workshop weekend, there will be community support and interactive sessions guided by social workers, licensed therapists and health educators designed to help patients and caretakers cope with the unique impacts severe VWD can have on our mental wellbeing.
Topics will address:
Isolation
Invalidation
Medical Trauma
PTSD
Loss
Chronic pain/mobility loss
Relationship impacts
This workshop will provide group discussion sessions throughout the weekend for patients, caretakers of children and support persons for adults.
Workshop Details:
A hotel room and meals will be provided for the Type 3/Severe VWD patient and a guest from Friday, November 17th at 5pm to Sunday, November 19th at 2pm, 2023. The patient and their guest will be fully responsible for their own transportation arrangements and costs to and from West Palm Beach Marriott, 1001 Okeechobee Blvd, West Palm Beach, Florida.
The hotel is located approximately 2 miles from the Palm Beach International Airport (PBI) and provides a complimentary shuttle service to/from the hotel.
For more information about West Palm Beach Marriott, please visit: West Palm Beach Marriott.
Resource materials will be provided to attendees throughout the weekend. Mobility equipment will be available upon request. All hotel rooms will be furnished with refrigerators for medications and a limited number of ADA rooms are available upon request.
Attendee Conflict of Interest Statement
To ensure that the event is safe from business solicitation (direct marketing of any kind, business discussions, etc.) and is enjoyable and stress free, we ask all patients and guests to abide by the following:
Patients and guests who are or have an immediate family member who is employed by or is a representative under contractual agreement with industry or home care companies are not eligible to attend this event.
Our funding sponsors have also agreed to these conditions and will not have any employees or representatives under contract attending the event as a patient or guest. The funding sponsors will have a table with information outside the conference room. That is the only place questions regarding business can be discussed and must be initiated by the patient/guest.
If at any time an event attendee feels uncomfortable with any other attendees on-site engaging in inappropriate business conversations about their products or services, please contact a staff or event organizer immediately.
By applying to attend this event and submitting a registration you are confirming that neither the patient, guest or immediate family member of the patient/guest is an employee or contractual representative of an industry or home care company.
If you have any questions concerning a conflict of interest, please contact JCesta@VWDConnect.org for clarification.
Registration and Information
Registration is now open! All Foundation Member patients have been emailed the link to register. If you are a Type 3/Severe VWD patient and are not yet a member of the Foundation, OR if you are a Foundation Member but have not yet received the registration link, please contact Jeanette Cesta, Executive Director, to inquire about joining this workshop.
Jeanette Cesta
JCesta@VWDConnect.org
561-373-3889
Patient Registration:
• The Registration Application is on-line.
• All information provided during registration will remain confidential and will not be shared with any agencies outside of the event function. Registration information will not be shared with any grant providers.
• Appropriate non-disclosure agreements have been signed with outside vendors handling confidential/medical information including provisions for its destruction following the event.
• Registration information will include accommodations and any special needs requests. Once you have completed your travel arrangements please email your flight information or if driving, your anticipated arrival/departure day and times to: JCesta@VWDConnect.org.
Guest Registration:
Each patient (or parent/guardian in the case of a patient under the age of 18) may invite one guest to share their room and attend the event.
PLEASE NOTE: This Workshop is intended for adults only, parents/guardians of children with severe VWD under the age of 18 are welcome to attend on behalf of their family.
All guests of Type 3/Severe VWD patients must:
1. Be at least 18 years old
2. Be involved in the care of the Patient
3. Attend all educational sessions and participate in the full workshop activities.
If an attendee wishes to bring additional guests beyond the one guest allowed, there is a registration fee of $500 to cover the additional meals and expenses. A patient has the option of having the additional guest(s) stay with them in their room provided by the Foundation, or the additional guest(s) may book another room by contacting Jeanette Cesta directly to utilize the group rate of $175 per night. Additional nights before/after the Workshop may also be booked at the group rate. All additional rooms/nights must be arranged for prior to September 30th.
If you have any questions, please contact:
Jeanette Cesta, Executive Director
VWD Connect Foundation Inc.
JCesta@VWDConnect.org
561-373-3889
A big thanks to Takeda for their generous support of this Workshop!
Please click on the logo below to visit their website.
2023 MENTAL HEALTH WORKSHOP
VWD Connect Foundation’s 2023 Mental Health Workshop weekend will be held Nov. 17 – 19, 2023.
Living with a severe chronic illness brings challenges beyond just the physical, both for patients and those who care for them.
During the Foundation’s first Mental Health Workshop weekend, there will be community support and interactive sessions guided by social workers, licensed therapists and health educators designed to help patients and caretakers cope with the unique impacts severe VWD can have on our mental wellbeing.
Topics will address:
Isolation
Invalidation
Medical Trauma
PTSD
Loss
Chronic pain/mobility loss
Relationship impacts
This workshop will provide group discussion sessions throughout the weekend for patients, caretakers of children and support persons for adults.
Workshop Details:
A hotel room and meals will be provided for the Type 3/Severe VWD patient and a guest from Friday, November 17th at 5pm to Sunday, November 19th at 2pm, 2023. The patient and their guest will be fully responsible for their own transportation arrangements and costs to and from West Palm Beach Marriott, 1001 Okeechobee Blvd, West Palm Beach, Florida.
The hotel is located approximately 2 miles from the Palm Beach International Airport (PBI) and provides a complimentary shuttle service to/from the hotel.
For more information about West Palm Beach Marriott, please visit: West Palm Beach Marriott.
Resource materials will be provided to attendees throughout the weekend. Mobility equipment will be available upon request. All hotel rooms will be furnished with refrigerators for medications and a limited number of ADA rooms are available upon request.
Attendee Conflict of Interest Statement
To ensure that the event is safe from business solicitation (direct marketing of any kind, business discussions, etc.) and is enjoyable and stress free, we ask all patients and guests to abide by the following:
Patients and guests who are or have an immediate family member who is employed by or is a representative under contractual agreement with industry or home care companies are not eligible to attend this event.
Our funding sponsors have also agreed to these conditions and will not have any employees or representatives under contract attending the event as a patient or guest. The funding sponsors will have a table with information outside the conference room. That is the only place questions regarding business can be discussed and must be initiated by the patient/guest.
If at any time an event attendee feels uncomfortable with any other attendees on-site engaging in inappropriate business conversations about their products or services, please contact a staff or event organizer immediately.
By applying to attend this event and submitting a registration you are confirming that neither the patient, guest or immediate family member of the patient/guest is an employee or contractual representative of an industry or home care company.
If you have any questions concerning a conflict of interest, please contact JCesta@VWDConnect.org for clarification.
Registration and Information
Registration is now open! All Foundation Member patients have been emailed the link to register. If you are a Type 3/Severe VWD patient and are not yet a member of the Foundation, OR if you are a Foundation Member but have not yet received the registration link, please contact Jeanette Cesta, Executive Director, to inquire about joining this workshop.
Jeanette Cesta
JCesta@VWDConnect.org
561-373-3889
Patient Registration:
• The Registration Application is on-line.
• All information provided during registration will remain confidential and will not be shared with any agencies outside of the event function. Registration information will not be shared with any grant providers.
• Appropriate non-disclosure agreements have been signed with outside vendors handling confidential/medical information including provisions for its destruction following the event.
• Registration information will include accommodations and any special needs requests. Once you have completed your travel arrangements please email your flight information or if driving, your anticipated arrival/departure day and times to: JCesta@VWDConnect.org.
Guest Registration:
Each patient (or parent/guardian in the case of a patient under the age of 18) may invite one guest to share their room and attend the event.
PLEASE NOTE: This Workshop is intended for adults only, parents/guardians of children with severe VWD under the age of 18 are welcome to attend on behalf of their family.
All guests of Type 3/Severe VWD patients must:
1. Be at least 18 years old
2. Be involved in the care of the Patient
3. Attend all educational sessions and participate in the full workshop activities.
If an attendee wishes to bring additional guests beyond the one guest allowed, there is a registration fee of $500 to cover the additional meals and expenses. A patient has the option of having the additional guest(s) stay with them in their room provided by the Foundation, or the additional guest(s) may book another room by contacting Jeanette Cesta directly to utilize the group rate of $175 per night. Additional nights before/after the Workshop may also be booked at the group rate. All additional rooms/nights must be arranged for prior to September 30th.
If you have any questions, please contact:
Jeanette Cesta, Executive Director
VWD Connect Foundation Inc.
JCesta@VWDConnect.org
561-373-3889
A big thanks to Takeda for their generous support of this Workshop!
Please click on the logo below to visit their website.