Registration is essential and we’ve tried to make it easy:

Start by contacting:
Jeanette Cesta
Executive Director
JCesta@VWDConnect.org
561-373-3889

Criteria for Membership in VWD Connect Foundation Inc.:

✔ A diagnosis of Type 3 Von Willebrand Disease or

✔ Diagnosis of another type of VWD Disease with a laboratory result of ≤ 10% for any of the Von Willebrand Panel values (VWF Antigen, VWF Activity and FactorVIII)

✔ A parent/legal guardian of a minor patient (under the age of 18 years old) may join the Foundation on behalf of their child.

✔ Membership is open internationally, however some travel grant opportunities and in-person events may be restricted to U.S. residents.

For more information please contact:
JCesta@VWDConnect.org

A primary concern for the Foundation is the safety and privacy of our Community Members. We will not share your information unless it is necessary to the execution of Foundation activities. To ensure your private information is protected, we have established the following guidelines:

Exclusion to Membership:

Patients who are employed by or representative under contractual agreement with industry/and or home care companies.

Patients with a Family Member employed by or a representative under contractual agreement with industry and/or home care companies.
“Family Member” defined as:

• A primary caretaker/parent of a minor child with severe VWD.
• A primary caretaker/parent of an adult child (over the age of 18 years old) with severe VWD who is financially dependent on a caretaker. Dependency is determined by financial support, providing insurance, primary residence (regardless if the patient is away at school)or tax return dependent status.
• A patient’s spouse or significant other residing in the same household.
•Any person living in the patient’s household.

If you have any questions or concerns about Membership eligibility, please don’t hesitate to contact us. This policy is reviewed annually. The concerns of current Members are given serious consideration.