Who can attend?

All parents/guardians of sVWD patients under the age of 18

When is the Workshop?

Friday July 18, 2025, from 10:00AM to 2:30PM

What will be provided?

The Foundation will provide a hotel room on Thursday night July 17 (in addition to the standard Friday-Sunday conference nights) for those that will be attending the Workshop. Additionally, Workshop attendees will receive breakfast and lunch on Friday, July 18.

Will there be childcare available?

Yes, childcare will be provided during workshop hours for patients and their siblings 12 years old and under.       

What about patients and siblings between the ages of 13-17 years old?

Parents and guardians are responsible for the appropriate supervision of minors who will be at the hotel while the parents/guardians are attending the Workshop. To assist, the Foundation will be offering Staff supervision of 13- to 17-year-olds during the Workshop hours if that option is chosen during registration.

How do I register? You may select to register for the Parenting Workshop as part of the normal Conference registration process.

The deadline to register for the Parenting Workshop is May 23, 2025 due to the additional hotel rooms and childcare services that must be contracted to accommodate this Workshop.