PROVIDER EDUCATION WORKSHOP

VWD Connect Foundation (VCF) was formed to serve the bleeding disorder community, focusing on severe Von Willebrand Disease (sVWD). We provide education and connection for patients and families, and support research which will benefit the Von Willebrand Disease community. In support of these patients accessing knowledgeable management and care from their medical providers, the Foundation hosted a Provider Education Workshop November 8-10, 2024, at the West Palm Beach Marriott in West Palm Beach, Florida.

The Foundation has identified a strong need for focused education for providers across multiple disciplines specific to severe Von Willebrand Disease patients. Curriculum presented by Foundation Faculty and was designed to increase provider knowledge on management, treatment options and disease state including laboratory & genetic testing. Sessions were conducted in both full assembly and small group discussions.

Attendance included medical professionals who work with, or expect to be working with, severe VWD patients:

• Adult Hematologists

• Gastroenterologists

• Pediatric Hematologists

• Hematology/Infusion Nurses

• Orthopedic Surgeons

• OB/Gynecologists

• Physical Therapists

• Genetic Counselors

• Hematology Social Workers

• Family/Maternal Medicine

The weekend workshop began on Friday, November 8 with an opening reception at 5:00PM and ended at 3:00PM after lunch on Sunday, November 10. The Foundation provided a free of charge hotel room for Friday and Saturday nights, and all meals and conference materials for those attending.

Sessions included:

• Disease state – genetics, symptoms, treatment options and management

• Case study presentation – by both faculty and attendees for discussion

• Research update and think tank

• Six Foundation members will participate in a panel sharing experiences living with sVWD.