2023 INTERNATIONAL TYPE 3/SEVERE
VWD CONFERENCE
The 2023 International Conference will be held
July 23 – 25, 2023.
We are so excited to introduce VWD Connect’s first-ever International event!
Conference Mission
To provide an opportunity for international Type 3/Severe Von Willebrand Disease patients and a guest to enhance their connection with other patients, care providers, the bleeding disorder community and the community at large.
To accomplish this mission we will
- Provide hotel accommodations and meals for a 3-day, 2-night conference for patients and a guest.
2. Gather a faculty of healthcare providers specializing in bleeding disorders including physicians, nurses, physical therapists, social workers, geneticists and health educators.
3. Educational content will consist of full assembly and small group presentations and discussions.
4. Included among the medical educational topics will be: diagnosis, symptoms, treatment options, inhibitors, prophylaxis and joint health.
5. Psychosocial topics will include: relationships, family challenges, emotional challenges of loss and depression, disclosure and positive coping strategies.
6. Provide a safe and relaxed atmosphere conducive to making connections between attendees.
Conference Details
A hotel room and meals will be provided for the Type 3/Severe VWD patients and a guest from July 23-25, 2023. The patient and their guest are fully responsible for their own transportation arrangements and costs to and from West Palm Beach Marriott, 1001 Okeechobee Blvd, West Palm Beach, Florida. If travel costs prohibit attendance, a limited amount of financial assistance is available on a case by case basis until funds are depleted.
The hotel is located approximately 2 miles from the Palm Beach International Airport (PBI) in West Palm Beach, Florida and provides a complimentary shuttle service to/from the hotel.
For more information about West Palm Beach Marriott, please visit: West Palm Beach Marriott.
Attendees have the option of booking additional nights at their own expense, a group rate link will be provided to those interested in extending their stay.
Attendee Conflict of Interest Statement
To ensure that the conference is safe from business solicitation (direct marketing of any kind, business discussions, etc.) and is enjoyable and stress free, we ask all patients and guests to abide by the following:
Patients and guests who are or have an immediate family member who is employed by or is a representative under contractual agreement with industry or home care companies are not eligible to attend this conference.
Our funding sponsors have also agreed to these conditions and will not have any employees or representatives under contract attending the conference as a patient or guest. The funding sponsors will have a table with information outside the conference rooms. That is the only place questions regarding business can be discussed and must be initiated by the patient/guest.
If at any time a conference attendee feels uncomfortable with any other attendees on-site engaging in inappropriate business conversations about their products or services, please contact a staff or conference organizer immediately.
By applying to attend this conference and submitting a registration you are confirming that neither the patient, guest or immediate family member of the patient/guest is an employee or contractual representative of an industry or home care company.
If you have any questions concerning a conflict of interest, please contact JCesta@VWDConnect.org for clarification.
Registration and Information
On-line registration will open in the Spring. If you are an international patient or healthcare provider interested in participating in the conference please contact:
Jeanette Cesta, Executive Director
JCesta@VWDConnect.org
561-373-3889
Patient Registration
• The Registration Application is on-line.
• All information provided during registration will remain confidential and will not be shared with any agencies outside of the conference function. Registration information will not be shared with any funding sponsors.
• Appropriate non-disclosure agreements have been signed with outside vendors handling confidential/medical information including provisions for its destruction following the conference.
Guest Registration
Each patient may invite one guest to share their room and attend the conference. Exception: in the case of a patient under the age of 18, two adult caretakers may attend as guests staying in the same hotel room.
All guests of Type 3/Severe VWD patients must:
1. Be at least 12 years old
2. Be involved in the care of the Patient
3. Attend all educational sessions and participate in the full conference activities.
If a patient wishes to bring additional guests beyond the one guest allowed there is a registration fee of $600 to cover the additional meals and expenses. A patient has the option of having the additional guest(s) stay with them in their room provided by the Foundation, or the additional guest(s) may book another room at the group rate with the hotel directly utilizing the Foundation’s group rate link.
2023 INTERNATIONAL TYPE 3/SEVERE
VWD CONFERENCE
The 2023 International Conference will be held
July 23 – 25, 2023.
We are so excited to introduce VWD Connect’s first-ever International event!
Conference Mission
To provide an opportunity for international Type 3/Severe Von Willebrand Disease patients and a guest to enhance their connection with other patients, care providers, the bleeding disorder community and the community at large.
To accomplish this mission we will
- Provide hotel accommodations and meals for a 3-day, 2-night conference for patients and a guest.
2. Gather a faculty of healthcare providers specializing in bleeding disorders including physicians, nurses, physical therapists, social workers, geneticists and health educators.
3. Educational content will consist of full assembly and small group presentations and discussions.
4. Included among the medical educational topics will be: diagnosis, symptoms, treatment options, inhibitors, prophylaxis and joint health.
5. Psychosocial topics will include: relationships, family challenges, emotional challenges of loss and depression, disclosure and positive coping strategies.
6. Provide a safe and relaxed atmosphere conducive to making connections between attendees.
Conference Details
A hotel room and meals will be provided for the Type 3/Severe VWD patients and a guest from July 23-25, 2023. The patient and their guest are fully responsible for their own transportation arrangements and costs to and from West Palm Beach Marriott, 1001 Okeechobee Blvd, West Palm Beach, Florida. If travel costs prohibit attendance, a limited amount of financial assistance is available on a case by case basis until funds are depleted.
The hotel is located approximately 2 miles from the Palm Beach International Airport (PBI) in West Palm Beach, Florida and provides a complimentary shuttle service to/from the hotel.
For more information about West Palm Beach Marriott, please visit: West Palm Beach Marriott.
Attendees have the option of booking additional nights at their own expense, a group rate link will be provided to those interested in extending their stay.
Attendee Conflict of Interest Statement
To ensure that the conference is safe from business solicitation (direct marketing of any kind, business discussions, etc.) and is enjoyable and stress free, we ask all patients and guests to abide by the following:
Patients and guests who are or have an immediate family member who is employed by or is a representative under contractual agreement with industry or home care companies are not eligible to attend this conference.
Our funding sponsors have also agreed to these conditions and will not have any employees or representatives under contract attending the conference as a patient or guest. The funding sponsors will have a table with information outside the conference rooms. That is the only place questions regarding business can be discussed and must be initiated by the patient/guest.
If at any time a conference attendee feels uncomfortable with any other attendees on-site engaging in inappropriate business conversations about their products or services, please contact a staff or conference organizer immediately.
By applying to attend this conference and submitting a registration you are confirming that neither the patient, guest or immediate family member of the patient/guest is an employee or contractual representative of an industry or home care company.
If you have any questions concerning a conflict of interest, please contact JCesta@VWDConnect.org for clarification.
Registration and Information
On-line registration will open in the Spring. If you are an international patient or healthcare provider interested in participating in the conference please contact:
Jeanette Cesta, Executive Director
JCesta@VWDConnect.org
561-373-3889
Patient Registration
• The Registration Application is on-line.
• All information provided during registration will remain confidential and will not be shared with any agencies outside of the conference function. Registration information will not be shared with any funding sponsors.
• Appropriate non-disclosure agreements have been signed with outside vendors handling confidential/medical information including provisions for its destruction following the conference.
Guest Registration
Each patient may invite one guest to share their room and attend the conference. Exception: in the case of a patient under the age of 18, two adult caretakers may attend as guests staying in the same hotel room.
All guests of Type 3/Severe VWD patients must:
1. Be at least 12 years old
2. Be involved in the care of the Patient
3. Attend all educational sessions and participate in the full conference activities.
If a patient wishes to bring additional guests beyond the one guest allowed there is a registration fee of $600 to cover the additional meals and expenses. A patient has the option of having the additional guest(s) stay with them in their room provided by the Foundation, or the additional guest(s) may book another room at the group rate with the hotel directly utilizing the Foundation’s group rate link.