We have been sharing with you information concerning the new VWD Guidelines that have been under development for the last two years. Now they are open for public comment through May 15, 2020. Click here to read the proposed guidelines and learn how to share your comments.
Our annual National Type 3/Severe Von Willebrand Disease Conference scheduled for June 26-29, 2020 has been put on the back-burner for now as we plan to re-engineer it as a multi-day “virtual” event for late fall. More information will follow as we combine people, platforms and technologies to help us deliver general sessions, breakout rooms, medical presentations, small group meetings and yes, even entertainment! …..so stay tuned!
Leading up to the Conference we thought it was essential to find ways to stay connected and engaged as a community; especially through the ongoing challenges posed by the COVID-19 Virus. Our response is the launch of our Staying Connected Initiative.
The Foundation will be hosting a virtual 5-week series of social, educational and support sessions using the popular and user-friendly platform ZOOM. Our first event, “An Evening with the Foundation” will take place Saturday, April 18th at 7:00 pm EST.
Foundation members have already been sent an email regarding how to become involved in the Staying Connected Initiative. If you are not currently a member but would like to join or learn more, please contact: Jeanette Cesta at JCesta@VWDConnect.org