Welcome! I am so excited that we are launching the VWDConnect.org website! I hope you find this site to be a place for connection; connection with each other, the bleeding disorder community and medical community. I like to think of this website as a “virtual conference”. At the first national Type 3 VWD conference in May 2017, the energy and power of the patients and families, faculty, national organization representatives and the staff being able to come together to share, support and educate was a very special experience. But since we all don’t live in the same hometown, I hope this can become your virtual conference when we can’t be together physically.
Our goal to keep the content fresh with current information on resources, Foundation news and research information and opportunities. We will be also adding a private, Community Member only chatroom later in 2018. The direction of the website will be developed with the Community Members’ input, so start thinking about what you would like to see on the website.
For now, please explore the site and let us know your thoughts. For those of you who are visiting and are unfamiliar with VWD Connect Foundation or Type 3 VWD, please let us know if you have any questions as you look around.
Until next post,
Co-Founder and President
VWD Connect Foundation